PreSERVE Coalition

© 2019 by PreSERVE Coalition

Based in

Portland, Oregon


preservehealthcoalition@gmail.com

RESEARCH COLLABORATIONS 

Benefiting our community

PreSERVE Coalition supports research that centers on Portland’s older Black community. Researchers interested in working with us undergo a review process. They must demonstrate why their research is important to the health of older Black adults, how it will benefit our community, and how the researcher will sustain a relationship with our community after the research is over.

CURRENT RESEARCH COLLABORATIONS INCLUDE

SHARP (Sharing History through Active Reminiscence & Photo-imagery) Study

Lead:

Raina Croff, PhD. OHSU

SHARP is a neighborhood walking program to increase social and physical activity. The study’s community giveback was an online resource and workshops about healthy aging in the Black community. Walking routes with historical images to prompt conversation are available on the website. An oral history digital archive of SHARP participants’ memories, stories, and reflections about Black life in Portland will be made available soon.

Factors affecting Clinical Research Participation among People with Alzheimer’s Disease and Related Dementias

Lead:

Nicole Bouranis, MPH; PSU-OHSU

Examines how policy, system, organizational, and personal factors affect why or why not people with Alzheimer’s disease and related dementias or their caregivers participate in dementia research. African Americans are more likely to be diagnosed with ADRD, but are less likely to participate in clinical research. PreSERVE helped recruit older Black adults to serve on the community advisory board for this dissertation study.

Tele-Stella, Tele-Savvy, Tele-Star Caregiver Support Studies

Lead:

Allison Lindauer, PhD, OHSU

The Tele-STELLA (Support via TEchnology: Living and Learning with Advancing ADRD) and other tele-study interventions address the need for a personalized approach to assist families in managing the behavioral symptoms of dementia. Tele-studies use videoconferencing to connect experienced guides (e.g., nurses) with CPs. The real-time educational intervention is for families caring for those in moderate to late-stage dementia. 

Mindfulness in the African American Community

Lead:

Jeffrey Proulx, PhD. OHSU

Older Black adults engaged in X weekly mindfulness-based stress reduction and discussed ways that mindfulness classes could better reflect African American culture.

Designing Faith-Based Home Activities for African American Older Adults with Dementia

Lead:

Fayron Epps, PhD, Georgia State University

Participation in religious activities provides meaningful connections and enhances spiritual connectedness and quality of life for many African American older adults. This project will benefit the African American community by building awareness about dementia and support families affected by dementia.